HAE Shared Decision-Making Tool
Overview
This Shared Decision-Making Tool has been designed to provide an overview of your Hereditary Angioedema (HAE) before meeting with your physician to discuss a treatment plan. The HAE Shared Decision-Making Tool will provide an overview of your HAE journey to date and form the basis for collaboration between you and your treating physician. The questions that follow are designed to better understand your current experience with HAE while capturing your goals for the future. Your answers will empower a joint decision-making process to enable the creation of your personalized treatment plan.
If you have any questions regarding the Shared Decision Making tool, please contact research@haea.org.
A Shared Decision-Making Tool provided by
US Hereditary Angioedema Association
The US Hereditary Angioedema Association (HAEA) is a 501 (c)(3) non-profit advocacy and research organization serving people living with the rare genetic condition, Hereditary Angioedema (HAE), and their families. Founded and staffed by people with HAE and caregivers, the US HAEA is committed to actively engaging our community in a wide variety of grassroots activities that promote HAE education and awareness. We provide personalized services to address the unique needs of people with HAE and their families, which include helping them secure access to and reimbursement for modern HAE medicines. Our great success in supporting clinical research has resulted in a variety of FDA-approved therapeutic options. We work closely with expert physicians to continuously upgrade the quality of life through improving diagnosis and knowledge of the condition, and encouraging a tailored, patient-focused use of available therapeutic options. The HAEA is product and company neutral, and continues to enthusiastically support drug discovery research aimed at the next generation of HAE therapies.